I am a health and wellness advocate who, in 1994, was diagnosed with traumatic brain injury, broken tail bone and PTSD. In 2003, after I suffered from a concussion with whiplash, I was diagnosed with a rare neurological pain disorder called Reflex Sympathy Dystrophy* (RSD). Within a year, the RSD had spread through every limb and went into my organs turning into the rare Systemic RSD which is a Centralized Pain Disorder. I developed debilitating Causalgia Dystonia, Spasmodic Torticollis, full body Hyperalgesia with full body Hypoallodynia. Lights, sounds, smells, touch–became excruciatingly painful tools of torture to my heightened senses. I even developed a food allergy/extreme sensitivity to the Solanaceae or Nightshade food family.
I was later diagnosed with a secondary diagnosis of Intractable Pain Disease in 2010 which includes an autoimmune component and life threatening stress on my internal organs.
Then, even though I have chronic encephalitis (CTE) from my history of head injuries, in 2012, I had encephalitis (PVE) so severe that it was causing so much damage that my brain was literally turning to mush. I was so sick, in fact, that my doctor gave me a life expectancy of approximately 5 years.
However, my doctor, Forest Tennant, MD and my family, including my Dad who is a Dr specializing in FP, Internal Medicine and is a Hospitalist, helped me to not only think outside of the box but help me to access complementary treatment options. In particular, Hyperbaric Oxygen Therapy (HBOT) was one of the most helpful things I did and continue to do. So, I have been able to not only survive, but I’m as close to thriving as I could hope to be.
This is just an overview of every major medical issue I have faced. I will go into more details over time. Please, feel free to ask me any questions.
*Around the same time I was first diagnosed with RSD, they changed the name from Reflex Sympathy Dystrophy to Complex Regional Pain Syndrome but it is still known as both RSD and CRPS. I usually call it CRPS.