10 Myths About the Opioid Crisis — Pain News Network

10 Myths About the Opioid Crisis — Pain News Network
— Read on www.painnewsnetwork.org/stories/2017/12/24/10-myths-about-the-opioid-crisis

#OpioidCrisis Pain Related SUICIDES associated with forced tapers

October 3rd, 2018 More PAIN RELATED SUICIDES are continuing with opioid pain medication reductions and discontinuations as suggested by the CDC and by Andrew Kolodny, M.D. and his “Physicians for…
— Read on medium.com/@ThomasKlineMD/opioidcrisis-pain-related-suicides-associated-with-forced-tapers-c68c79ecf84d

Congress Passes Bipartisan Opioid Legislation, 2018

The Senate on Oct. 3 overwhelmingly passed bipartisan legislation aimed at ending the nation’s opioid crisis.
— Read on www.ada.org/en/publications/ada-news/2018-archive/october/congress-passes-bipartisan-opioid-legislation

Federal Opioid Legislation Passed

Federal Opioid Legislation Passed
— Read on www.google.com/amp/s/www.practicalpainmanagement.com/amp/28866

Many Pain Patients Have Lost Access to Pain Meds. What Do Patients Do Now? “The Kratom User’s Guide”

There’s a lot of negativity in the media lately about Kratom. The push from the DEA and FDA to ban Kratom is fueled by powerful special interests who pump billions of dollars into lobbying groups every year. A lot of other pain patient advocates won’t publicly support the use of Kratom due to lack of research and the hysteria around it.

However, I was first told about Kratom by my former Intractable Pain Specialist, Dr. Forest Tennant, a few years ago. He actually gave some to his patients to try. His goal for his patients was always to get our need for high dose opioids down using a vigilant, multi pronged approach to pain management. It’s important to buy Kratom from a reputable company that sources that uses a quality controlled laboratory.

The people who have overdosed with Kratom have illegal drugs in their system, like heroin and/or fake pharmaceuticals. I started using Kratom myself when my ability to be prescribed adequate pain medication to allow me to function. I have had Intractable Pain for over 15 years and spent the majority of that time bed ridden from my TBI, full body CRPS, EDS and PVE.

With the help of Hyperbaric Oxygen and Somatic Experiencing I have successfully cut my medications by well over half of what I took a couple years ago. However, I still need more than the CDC’s “recommended” dose which has somehow become the legal prescribing limit for Dr’s across the country. Most Dr’s won’t prescribe opioids anymore, pharmacies don’t carry opioids. The media is always espousing non opioid, alternative pain medication options which in the high doses Intractable Pain patients need are either toxic on the kidney, liver and/or the stomach. Whereas, prescription opioids are actually one of the safest medications when used properly, under careful supervision of a doctor. They are especially safe in terms of toxicity on vital organs unlike Naproxen, Acetaminophen, NSAID’s and other non opioid alternatives.

The access to prescription pain medications has been virtually eradicated while overdose and suicide rates are skyrocketing. Fake pharmaceuticals are flooding our streets and the media still accuses doctors of overprescribing. So, when someone tells you they can get you OxyContin and they show something that looks identical to their old prescription, it’s logical to think it’s from one of these “overprescribing doctors”. Yet, these are NOT legitimate pharmaceuticals. They are fake pharmaceuticals! Usually these counterfeit street drugs are made with literally everything that cleans your kitchen sink and, all too often, are laced with counterfeit Fentanyl. Yet, people are desperate to get their pain down so they can be functional again. Plus, these fake opioids are far more readily available than prescription opioids and they look virtually identical.

These days, tragically, without adequate pain relief, people are so desperate to put an end to their suffering, they are taking their own lives. Yet, when suicide is a topic in the news, this is never addressed. Pain patients are being stigmatized and silenced. The anxiety of actually finding a Pain Dr and finding a pharmacy that even carries your pain medication is overwhelming. We are now political pawns in the latest war on drugs.

I have gone back and forth on posting information on Kratom. However, as I hear and read about more pain patients turning to suicide because they no longer have access to pain medications, I feel like it’s an important issue to blog about. I wish we didn’t have to turn towards something that is unregulated. I wish pain was talked about with compassion and respect. I wish every news piece on the opioid epidemic also highlighted a person whose life dramatically got better because they were prescribed prescription opioids. I wish that people would stop accusing pain patients of being addicts because Intractable Pain is a life threatening disease and without pain control, we are doomed to a drastically shortened life span.

For us, pain is more than a nuisance, it’s a disease. Most pain patients are NOT addicts and yet we are labeled and treated as such. I am here to advocate for pain patients. Wether you have chronic pain or Intractable Pain, if your quality of life will benefit from pain medication that you can no longer get, I want to advocate for you. I know how devastating suffering from debilitating pain and loosing access to your medications can be. Because of new opioid prescribing and manufacturing laws, people are now, out of medications. Thus, after years, even decades of functioning on prescription pain medications, they are now bed ridden and house bound.

If interested in trying Kratom, please, understand that it’s important to research the company Kratom. Do not take a lot to start.

Most pain patients say that Red Maeng Da is the most effective. The second most talked about for pain is Green Maeng Da.

Be aware that the FDA had been trying to ban Kratom for years now. There is a lot of propaganda out there that is meant to scare people into not using Kratom. However, the same is true for prescription opioids. Unfortunately, pain patients are never a part of the public dialogue. We do not have billions of dollars to spend on lobbyists to raise our voices in Washington DC. So, it’s up to us to find each other and help one another. So, dig a little deeper and you will find that the people who have adverse affects have so many illegal drugs in their system that they cannot “officially” say it was the Kratom that killed them. But, they certainly make it sound that way.

Be safe! Be well! Be functional!

The Kratom User’s Guide
— Read on www.sagewisdom.org/kratomguide.html

”Buying studies, diluting messages: How health care companies use much more than lobbying to protect profits” | Tarbell

With Congress set to debate “Medicare-for-all,” Tarbell examines efforts by health insurers to take over past health care reforms.
— Read on www.tarbell.org/2018/12/buying-studies-diluting-messages-pr-campaigns-how-health-care-companies-use-much-more-than-lobbying-to-protect-profits-1/

“The Daily Pain of Having Extreme Perception”

When I got full body Reflex Sympathy Dystrophy (CRPS), I had developed Centralized Pain. None of the Neurologists, Physical Rehab Specialists or Anesthesiologists I saw were ever able to explain why smells, tastes, sounds and light touch became excruciatingly painful. It was as though my senses became a means for by body to become a self contained Medieval Torture Chamber. I wasn’t able to live independently because I was so debilitated from my RSD that was caused by a post concussive syndrome with persistent whiplash. I had a Traumatic Brain Injury in 1994 and was born with Ehlers Danlos Syndrome but was only recently diagnosed with EDS. So, my neurological issues were fairly complicated and overlapped with early childhood post viral auto immune syndrome along with a connective tissue disorder that became more progressively more painful and degenerative over time.

The progressive neurological and physiological degeneration made my Sensory Processing Disorder increasingly more excruciating over time. Yet, no Dr was ever able to explain why I had developed this complicated problem with sensory input. I coped by calling it my “spidey senses”. I couldn’t even bear the smell of onions or garlic being cooked in a distant part of the house… and one day, the sound of a neighbor’s wind chime caused me such agony that I begged my Mom to find it and make it stop. It was more than 5 houses down the street and yet it sounded like it was in my bedroom. Light touch felt like shards of glass on my skin and people feared touching me. My isolation became more unbearable and I became increasingly filled with despair. Knowing that my suffering was affecting the lives of those around me was harder than living with 24/7 debilitating pain. I lived with a heating pad on high, satiny soft clothes, I wore soft, “Ugg” styled boots year round because everything else was too painful, I had to have sheets made from Bamboo or Eucalyptus and I never went without ear plugs.

The only person who could give me any insight was my Mom, who is a Licensed Marriage and Family Therapist. She had experience with children who had SPD.

Now, after living with this for 15 years, I am in a much better place. Thankfully, Hyperbaric Oxygen has transformed my life and my senses are less painful than before. However, I use a weighted blanket, have soft, satiny sheets made out of wood pulp and I live a very quiet life. I had to let go of friends and family who bring conflict, judgement and drama. It’s been a hard journey but self care has been central to my path to healing. I know that I have chronic diseases but Healing & Wellness are not beyond my reach. It’s because of my health issues that it’s more important than ever before that I do everything I can to support my special needs.

I will be posting more personal stories and videos… along with more information on things that have helped me to not be bed ridden anymore. Although, there are still days and weeks when I am still bed ridden from my pain. However, I try to not beat myself up over it. I find that honoring my body serves my wellness in the long run.

Understanding the complex facets, like Sensory Processing Disorder that comes with Centralized Pain, RSD/CRPS, Arachnoiditis, Chronic Fatigue Syndrome, Autism and other medical diseases and syndromes is crucial to taking care of yourself and your loved ones. The person with SPD is affected as are those in that person’s life.

This article is both illuminating and filled with vital information on SPD. I hope you can read it and share it with anyone who can benefit from it.

“When a gentle glow feels like a spotlight and everyday sounds hurt your ears, life can get anxious and painful. But there may be an upside to being a highly sensitive person.
— Read on www.bbc.com/future/story/20160617-the-daily-pain-of-having-extreme-perception