I Was Diagnosed With Arachnoiditis – What is It?- NORD (National Organization for Rare Disorders)

So often, pain Dr’s refuse to give pain patients opioids unless they have invasive procedures, like nerve blocks and spinal epidurals. I had 3 epidurals in a 3 week span. 1 a week for three weeks. I also endured a plethora of nerve blocks in my neck and a sympathectomy, which I did not approve.

At first, I had an anasthsiologist that gave me Stellate Ganglia Nerve Blocks in my neck, week after week, for months. Afte this, I developed severe Spasmodic Torticollis and Causalgia Dystonia.

About a year later, a different pain Dr, wouldn’t continue to treat me with high dose opioids unless I went through more standard invasive, interventional, procedures. Every week, for 3 weeks, I had more Stellate Gangla Nerve Blocks, (other nerve blocks that I have to go back into my records to see the specific names), Botox all over my back + head and a Sympathectomy that I didn’t agree to. It was after these traditional, non opioid, invasive procedures that put me in a wheelchair. I thought it just flared my Full Body CRPS up. Now, it’s finally clear, that I developed Arachnoiditis as a result of these invasive procedures, specifically, the epidurals.

Arachnoiditis is more common in women! This is because of how common it is for women to get epidurals while for pain control during childbirth. Another invisible disease that can be dismissed as something “psychological” and not “real”. Our healthcare system is totally biased towards men. This isn’t hyperbole but based in factual reality.

What is Arachnoiditis and are these symptoms familiar to you? This condition is WAY too under diagnosed! So is, Ehlers-Danlos Syndrome, which I was diagnosed with last month. These go hand in hand and could be prevented if people were screened for EDS prior to giving them spinal epidurals. Our healthcare system needs an overhaul!!

Arachnoiditis – NORD (National Organization for Rare Disorders)
— Read on rarediseases.org/rare-diseases/arachnoiditis/

I Was Diagnosed With Arachnoiditis – What is It?- NORD (National Organization for Rare Disorders)

So often, pain Dr’s refuse to give pain patients opioids unless they have invasive procedures, like nerve blocks and spinal epidurals. I had 3 epidurals in a 3 week span. 1 a week for three weeks. I also endured a plethora of nerve blocks in my neck and a sympathectomy, which I did not approve.

At first, I had an anasthsiologist that gave me Stellate Ganglia Nerve Blocks in my neck, week after week, for months. Afte this, I developed severe Spasmodic Torticollis and Causalgia Dystonia.

About a year later, a different pain Dr, wouldn’t continue to treat me with high dose opioids unless I went through more standard invasive, interventional, procedures. Every week, for 3 weeks, I had more Stellate Gangla Nerve Blocks, (other nerve blocks that I have to go back into my records to see the specific names), Botox all over my back + head and a Sympathectomy that I didn’t agree to. It was after these traditional, non opioid, invasive procedures that put me in a wheelchair. I thought it just flared my Full Body CRPS up. Now, it’s finally clear, that I developed Arachnoiditis as a result of these invasive procedures, specifically, the epidurals.

Arachnoiditis is more common in women! This is because of how common it is for women to get epidurals while for pain control during childbirth. Another invisible disease that can be dismissed as something “psychological” and not “real”. Our healthcare system is totally biased towards men. This isn’t hyperbole but based in factual reality.

What is Arachnoiditis and are these symptoms familiar to you? This condition is WAY too under diagnosed! So is, Ehlers-Danlos Syndrome, which I was diagnosed with last month. These go hand in hand and could be prevented if people were screened for EDS prior to giving them spinal epidurals. Our healthcare system needs an overhaul!!

Arachnoiditis – NORD (National Organization for Rare Disorders)
— Read on rarediseases.org/rare-diseases/arachnoiditis/

So Many Dr’s Fail To Adress PTSD and Chronic Pain Unless You’re A Veteran… But the Connection Is Very Real. Check this Article Out

Post-traumatic stress disorder (PTSD) mostly is known for its effect on overall mental health. There is research, however, to support the fact that PTSD is
— Read on psychcentral.com/lib/ptsd-and-chronic-pain/

Invisible Diseases Higher Rates in Women… Why? Women Experience More Trauma. This Article Sheds A LittleLighy“The Connection Between PTSD and Pain

PTSD and pain often occur together. Get the facts about trauma-related pain and PTSD and learn why it can be important to treat them both.
— Read on www.verywellmind.com/the-connection-between-ptsd-and-pain-2797473

According to Rickie Lake’s New Documentary, Research & Access to Medical Cannabis Is A Human Rights Issue in, “WEED THE PEOPLE”

Cannabis has been off-limits to doctors and researchers in the US for the
past 80 years, but recently scientists have discovered its anti-cancer
properties. If weed is truly saving lives, why doesn’t the government want
people to access it?
— Read on www.weedthepeoplemovie.com/

‘We, as a society, should be outraged’: a conversation about public health

In the United States, disparities in our healthcare systems between the rich and the poor are huge. This issue is complex, dynamic and deserves our attention.
— Read on www.statnews.com/2017/09/27/public-health-conversation/

Strict limits on opioid prescribing risk ‘inhumane treatment’ of pain patients

Please, be aware that this article is a little out of date. Medicare did follow through on changing the coverage for those patients who need monthly pain medications for persistent chronic pain, including patients with Intractable Pain Disease and other long term, debilitating pain diseases and disorders. The UN has, also, stated the lack of access to pain medications is inhumane and cruel. However, this is an article that explains in a very clear, easy to understand manner, the complex ramifications of prescribing guidelines being used as the law and not as intended recommendations. It’s something that you can share with others to help explain why loosing access to pain medications is not helpful but instead is harmful to those who need opioid medications the most.

“Turning voluntary guidelines about prescribing opioids for chronic pain into strict policy will deny these medications to people who truly need them.”
— Read on www.statnews.com/2017/02/24/opioids-prescribing-limits-pain-patients/